By Cris Greer
WKTV Managing Editor
Guest speaker Johnny Agar held everyone’s complete attention when it was his turn to take the mic at The Vibe fundraiser for Kentwood’s Adaptive Recreation Programs.
“On the road of life there are many mountains to climb, valleys to get lost in and rocky roads to forge through,” said Agar to the very attentive audience on Sept. 14. “I see you all as signposts helping others to their own finish line.”
Born with cerebral palsy, and who doctors thought would never walk, Agar continued, “I fail all the time, but to me failure is just part of the process. If I let that stop me, I wouldn’t be able to get out of bed every morning. Together, there’s no stopping what you can do.”
Agar and his parents Jeff and Becki delivered many positive, inspirational messages to the audience at The Vibe, Kentwood’s Adaptive Recreation Programs fundraiser at the Kent District Library – Kentwood (Richard L. Root) Branch, 4950 Breton Ave. SE.
From marathons to motivational speakers … media outlets to TV commercials
Johnny, who uses a wheelchair, and his dad Jeff have competed in more than 200 races in various states, including multiple marathons, half marathons, 25Ks and more than 30 triathlons. They’ve also competed in six Ironman races where Jeff pulled Johnny 2.4 miles in a kayak, rode 112 miles on a custom tandem bike and pushed Johnny in a racing jogger during the marathon portion. In September 2022, TeamAgar completed their first full-distance Ironman in Maryland, where Johnny walked across the finish line.
“Featured on ESPN, NBC Nightly News, CBS Mornings, Today, and other media outlets, TeamAgar delivers a powerful moving message of family, faith and extraordinary courage. Their tenacity and indelible spirit have caught the attention of Olympic swimming great Michael Phelps and the sports apparel company Under Armour — so much so that UA placed them in two commercials: One with Phelps and the other with Dwayne ‘The Rock’ Johnson.” TeamAgar are also accomplished motivational keynote speakers and authors. (Source, johnnyagar.com)
After the fundraiser, Johnny and his parents shared more with WKTV.
“Does no good to have my failures bring me down”
“I like to take life one step at a time and just stay even-keeled because it doesn’t do me any good to have my failures bring me down,” Johnny explained. “The highs can sometimes look a little different for me having cerebral palsy because to an able-bodied person they may be “miniature wins” — like learning to do an everyday task such as opening a candy wrapper or brushing my teeth by myself – but to me they are huge victories. Most people can do those things without even thinking, but for me it takes a lot of effort and a lot of patience.
“From the day I was very young, my parents never put any limitations on me. My parents have always made sure to go the extra mile for me to make sure I have the best life possible despite my challenges. To watch them in action work so hard to help me fulfill my goals – while setting theirs aside – makes me understand how hard I need to work to let them know how thankful I am for them.”
Becki said when Johnny was born, his premature birth really turned their world upside down.
“He was our first child and as a young couple we never anticipated having any complications with his birth,” she explained. “So, when the doctors told us he had cerebral palsy and would probably never walk or talk, we were pretty jolted. Our reality had to be shifted. However, our faith had taught us to lean on God and not our own understanding. We knew God had a bigger and better plan than we could have ever imagined for Johnny, and we had to trust in that plan.
“One of the greatest things that came out of the news that Johnny had cerebral palsy was that it strengthened our resolve to raise Johnny as a typical child and to love him no matter what he could or couldn’t do. It strengthened our faith because it made us realize that we aren’t as in control as we like to think we are, and it brought our family closer together so we could work on raising this little boy to believe in his possibilities.”
“I am so proud of the man he has become”
“Now when I see Johnny encouraging others, turning his cerebral palsy into a positive rather than a negative, and using it to help encourage others and motivate others, it makes me want to burst with happiness. I am so proud of the man he has become. What a blessing it is to be able to watch your son change the trajectory of people’s lives in a positive way.”
When raising Johnny, they decided to not make any excuses for him.
“We wanted to treat him as if he had no disability,” Jeff explained. “We weren’t in denial as we saw his challenges every day first-hand, so there was no getting away from it. We knew it would be hard for him, but we also knew life was going to be hard for him. I think that mentality helped him to believe in himself and place no limits on himself.
“Johnny has always seen himself doing things that most would have said couldn’t be done given his disability. I am really proud of the fact that he didn’t listen to any of the naysayers and kept focused on his goals.”
Watching him speak to thousands the greatest gift
“Along with that, he keeps a sense of humor and learns to roll with the punches. Now, to watch him speak to thousands of people all over the country, to help encourage them with their challenges, is one of the greatest gifts to watch as his dad.”
Favorite TeamAgar moment?
“One of our favorite moments of all our races was crossing the finish line at Ironman Maryland,” Becki said. “We put so much time and effort into making moments like that happen. With it being our first to finish, it will always hold a special place in our hearts.”
Kentwood Mayor Stephen Kepley said he was amazed with TeamAgar’s presentation and story.
“It’s just an amazing inspirational story that gives you the vision of what can be,” said Kepley, after Johnny and his parents spoke at The Vibe. “They just give that inspiration saying, ‘If we can do it, then you can, too.'”
Kepley had much to say about the Kentwood Adaptive Recreation program as well.
“I think it’s successful because of the people running it,” Kepley said. “They see a vision, they have a passion, and that passion manifests itself in a very special way. The staff takes it personally and that’s why it is special. That’s why it’s an incredible program and has a great reputation because of the staff, their heart, their vision and because of the empowerment that they give people who participate in the program.
“As a city, we take care of Kentwood residents, but the adaptive sports program is one of those things that goes much farther than our city limits. Because all of it is being sponsored by corporations, gifts or the fundraising, we’re able to swing the doors wide open to people wherever they’re coming from … Traverse City, Lansing, (even) Florida.”
The Vibe fundraiser “A big success”
“The event was a big success with 120 guests in attendance,” said Laura Barbrick, marketing and events coordinator for Kentwood Parks and Recreation. “We raised over $7,000 between the silent auction, live auction and giving wall. Thank you to everyone who came out to support our Adaptive Recreation programs.”
Money raised at this year’s event will help purchase new equipment for Kentwood’s many adaptive programs. These offerings include active sports such as archery, kayaking, rock climbing and water skiing as well as more relaxed activities like leisure club and social events.
Kentwood recreation program coordinator Ann Przybysz said the wonderful thing about the adaptive programs is you don’t have to be a Kentwood resident to participate.
“We have people from all over West Michigan that come to participate in our programs,” Przybysz said. “A lot of people have been wanting things to do in their free time; healthy leisure opportunities, making new friends, seeing new places and just having a good time in the community.
“We serve people of all different diagnoses and abilities. We have a lot of individuals who have intellectual and developmental disabilities like autism, Down syndrome and we also serve people who have physical disabilities as well, maybe a spinal cord injury or spina bifida, people using wheelchairs.”
What’s the most popular program?
“Many of our programs are popular, but one of our big ones recently has definitely been our adaptive bowling program,” Przybysz said. “It’s a really positive social program that we’ve seen grow a lot. Also, our water sports programs are popular … water skiing and kayaking. Our adaptive recreation programs have been going on for 30 years and are very well established with the City of Kentwood.”
The emotional draw for employees
“I love getting to know the participants and their families, and hearing their stories and what lights up their lives,” Przybysz explained. “I love that we get to be a part of that … I love being able to touch peoples lives.”
Katelyn Bush, Kentwood recreation program coordinator, said it has been exciting and an honor to watch it grow, add new sports and buy new equipment.
“The people that come to our programs are from age five to well into their eighties; all ages and really all abilities. We have programs designed for all these different needs and it’s really fun to watch them succeed in whatever it is they’re doing.
“I think when you can find something that you’re passionate about and match it to a need in the world, that’s when you’ve truly made it. When you’re having fun doing your job and you’re serving others … that’s really satisfying and fun for me.”
The Kentwood Parks and Recreation Department provides Michigan’s most comprehensive adaptive recreation programming alongside several community partners, including Down Syndrome Association of West Michigan, Hope Network, Mary Free Bed Rehabilitation Hospital and more. Programs also are made possible thanks to the help of a strong volunteer network.
Programs are open to individuals of all abilities in Kentwood and beyond. Learn more about Kentwood’s adaptive programs and current offerings at kentwood.us/adaptive.
