end-of-life - WKTV Journal

Many of us realize that hospices are there to serve us.

It’s never too early to inquire about hospice care. With just a click or a call, you can learn about services available, eligibility, costs and more to find a good fit. (Adobe Stock)

But sometimes, it’s difficult to break the ice. How do you reach out – with a call or a click? And how do you express the need? With whom do you ask to speak? And what exactly do you say?

In a perfect world, there are protocols in place to accommodate all the above and more. And you should be able to reach out anytime – day or night, weekday or weekends, even on a holiday.

“At Emmanuel Hospice, we understand that life doesn’t stop when you have a need for hospice,” says Elizabeth Mangiapane, a patient access specialist there. “That’s why any time you call our main line, it’s going to be answered on a 24/7 basis. Easter Sunday? Middle of the night? It doesn’t matter. You will connect with someone who can help.”

Mangiapane emphasizes that a referral to Emmanuel can originate in more than one way. Often, a physician will make the connection. But sometimes, family members serving as caregivers become involved at the outset, and naturally they have questions about eligibility, timing and more.

While a physician’s order is required to perform a formal assessment, a representative from Emmanuel will welcome the opportunity to meet with a patient and/or their loved ones if they simply have questions.

In either case, “we do all the legwork,” Mangiapane says. If it’s determined someone qualifies, the hospice care provider will integrate the patient’s physician and medical history into the equation as needed.

“We’ll set up meetings. We’ll work with the doctors. We are glad to serve in any capacity that lessens the burden on that patient, on that family.”

Mangiapane notes that there’s never a “wrong time” to inquire about hospice. Too often, people will act on the misconception that hospice is only “for the last few days a patient has.”

On the contrary, “We’re trying more than ever to educate the community on how it can be for a much longer time period, so that we might focus earlier not on the quantity of life someone has left, but the quality of life that remains.”

For someone who lives in a nursing home or assisted living facility, that institution may have a working relationship with a preferred provider. But Mangiapane explains that a patient and their family have the right to choose any hospice, and shouldn’t feel pressured.

Mangiapane says it’s important you come away with a full understanding of the services a hospice provides. At Emmanuel, for example, a full slate of complementary services is available – pet visitors, massage therapy, music therapy, virtual reality and more.

Location of care is important to ask about, too. A common misconception is that hospice is a place you go to, but for most providers, hospice care can be provided anywhere. With Emmanuel, it can be in the hospital, a care facility or wherever a person calls home.

Cost is another consideration. Medicare and most commercial insurances will cover 100% of virtually everything provided by hospice – medications and visits, personal care, counseling and other services – but there are some limitations. A phone call can help you discover where you stand.

“Make your choices based on the needs of the patient and family,” says Mangiapane. “You want what’s right for you, and that can look different from person to person.”

For more information, visit EmmanuelHospice.org or call 616-719-0919.

Knowing when to call for hospice care can be a difficult decision, but many families say they wish they would have called sooner. Hospice care is available to anyone who’s received a physician’s diagnosis of six or fewer months to live.

By Emmanuel Hospice

It’s sometimes easier to define what hospice is not rather than trying to absorb all the things it is – especially in assessing when one should reach out.

“A common misconception is that we’re available only at the eleventh hour, or just days or weeks before someone passes,” says Dana Shelton-Clark, an admissions social worker with Emmanuel Hospice. “But hospice care is really holistic support for anyone who’s been given a physician’s prognosis of six or fewer months to live. And that’s only a requirement for admission.

“There’s no ticking clock, no time limit for the amount of time the hospice benefit can be used as long as someone remains eligible.”

What Shelton-Clark and her colleagues too often hear from patients and their caregivers is this: We wish we would have called sooner.

Dealing with an approaching death can be understandably trying, to say the least. At Emmanuel Hospice, says Shelton-Clark, a team approach is instituted to rally around the loved one and care for them in mind, body and spirit. And there’s no one-size-fits-all approach, either. Instead, care and options are customized to consider each individual’s wants and needs.

“We often get comments such as ‘I didn’t know this is what hospice is’ and ‘I didn’t know hospice could provide this,’” she explains. “All it really takes is a phone call to set up a meeting that will provide a clear and accurate window into all the services hospice offers.”

Shelton-Clark notes some people put off calling hospice because they’re being counseled by medical personnel still fighting for a cure.

“We understand that,” she says, “because most doctors are trained in an approach to do all they can to ‘fix’ the problem. But cures are not always possible, and hospice is a treatment option that should be offered and considered.

“Our focus is to instead provide interventions that relieve symptoms and allow patients to focus on how they really want to live, so that they have as many good days and months as possible.”

Shelton-Clark emphasizes hospice will come to wherever it is the loved one calls home – their own house, or a relative’s, or an assisted living facility or memory care unit. During a first discussion, there’s never any obligation to sign on or take next steps. That’s up to the individual and their caregivers. But sometimes, just that initial meeting is enough to help people understand their options going forward.

Some people actually improve during hospice care, in some cases enough to no longer require services. But they’re free to return if they decline to a point where they again meet eligibility standards; there are never any deadlines imposed.

Shelton-Clark acknowledges that the role of Emmanuel Hospice is as much to provide education as it is to provide care – doing all it can to acquaint people with what hospice is and why it’s better to reach out earlier than later.

“There are so many ways for us to assist,” she says, “especially for that person who’s been in and out of the hospital and is ready for that revolving door to finally stop. That’s the time to give us a call and learn more.

“Our compassionate and experienced team is ready to answer any questions you may have.”

For more information, visit EmmanuelHospice.org or call 616-719-0919.